Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL), Longitudinal Evaluation of Familial Frontotemporal Dementia Subjects (LEFFTDS) and the 4 Repeat Tauopathy Neuroimaging Initiative (4RTNI) are NIH-funded projects that store specimens at the National Cell Repository for Alzheimer’s Disease (NCRAD). All biospecimen requests undergo a formal review by the ARTFL/LEFFTDS Biospecimens and Genetics Committee. Our sample and data sharing policy can be found HERE. It is our goal to support all reasonable requests with scientific merit whenever possible. All applications will be treated as confidential information and will not be shared.
Costs of preparation and shipping of biospecimens are expected to borne by the requestor. Typical costs are listed on the NCRAD webpage